Well it has been almost 4 months since John has passed. We just finished the major all-stars in Yuma which was and emotional journey. The boys finished 2nd out of 10 teams and had to fight and struggle their way back from the losers bracket. the reason for the emotion was that John was supposed to be there with the the boys and I believe he was. Mikey pitched a no hitter and hit a 3 run homer on his dads birthday and Matt went back on a ball at the fence and continued to hit. MAtt Shaw had a card with John's picture on it the whole tourney. It meant a great deal to me to see just how much those kids loved my husband.
As for Lexi she has continued to work for the summer and will start Cross Country and Cheer this fall.
The older kids Jenni, Josh, and Jessi have been a constant source os support for me along with my parents, John's family and my friends,
I have moved into a new home with lots of space for the kids so it has been great the old memories of the house are often overwhelming for me so I believe the move was good. John would have been happy here.
I am moving on although very difficult at times. I miss the laughter and the human touch. He just had away of making us laugh and being alone quite honestly sucks. Even though I have an incredible support network I still feel empty and as if I have been punched in the stomach. This will pass.
I worry for my children and only hope I can be as strong for me and that I can be as strong as he was.
Tuesday, July 17, 2012
Thursday, April 26, 2012
1 month
Well we are at a month tomorrow. It still seems unreal however I am a realist and I quickly realize the enormity of the situation. Funny going through it we all of the family had hope that came from John. I miss him so as do my kids we are coping and when I say I'm fine it means I'm coping the best I am able. The kids have been angry especially Mike not having him(john) on the the field and at home has been difficult. Speaking of the field watching his team gather on the mound and scratch John's initials in at every game is tough to watch however the love I feel for all of those children to remember my husband will not soon be forgotten.
CANCER sucks I hear the word and become angry. Anger is where I am now. This will pass.
Just rambeling now Goodnight!
CANCER sucks I hear the word and become angry. Anger is where I am now. This will pass.
Just rambeling now Goodnight!
Monday, April 16, 2012
Finding our way
Well it has been 2 weeks it's quiet and we are trying to get back to normal although we will never be normal again. The feelings come and go often and often manifest at inopportune times. The kids go through phases andthis week is anger. Their anger is of course directed at me so I try not to take it personally. We celebrated Lexi's 16th birthday and it seemed hollow without him although I'm sure he was watching smiling down and he will be with her when she takes her driving test on Thursday.
The boys played with the 13 year olds this weekend and they hit great if you ask one of John's Friends who was umpiring he said he felt John on the field helping them. Mike was 3 for 3 on Sunday and Matt 2 for 3 I was very proud.
Finally, I am on a mission the mission gets bigger everyday to get medical practioners to pay attention to their patient's histories and not let things go. I get more angry that not one of John's Doctors evn thought the cancer could come back. It makes me believe that people do not understand the magnitude of this disease and how quickly it moves and destroys. This is my mission and those of you who know me understand that I am not a quitter. I am just getting my plan together so that this can't happen to another person as John wanted. If you want to continue to watch this I will be posting my progress.
Thank you for all your continued support!!!
The boys played with the 13 year olds this weekend and they hit great if you ask one of John's Friends who was umpiring he said he felt John on the field helping them. Mike was 3 for 3 on Sunday and Matt 2 for 3 I was very proud.
Finally, I am on a mission the mission gets bigger everyday to get medical practioners to pay attention to their patient's histories and not let things go. I get more angry that not one of John's Doctors evn thought the cancer could come back. It makes me believe that people do not understand the magnitude of this disease and how quickly it moves and destroys. This is my mission and those of you who know me understand that I am not a quitter. I am just getting my plan together so that this can't happen to another person as John wanted. If you want to continue to watch this I will be posting my progress.
Thank you for all your continued support!!!
Sunday, April 1, 2012
Sadness
Today it finally happened my husband finally lost his couragous battle with cancer. Watching someone battle this monster is heartbreaking. I have to thank Frannie, Mary, and Cheryl Webb for being with making sure my husband was clean and taken care of. They helped him die with dignity. So many people have helped along the way and I will thank you all however tonight I am tired and need to sleep. The boys have opening ceremonies tomorrow where they will throw out the opening pitch. John was going to do this and was so looking forward to it. Now the boys will take his place. He really loved all of you and fought to the very end. We are looking to have services mid week I will post later. Goodnight and thank you for all your love.
Quiet
The quiet is stiffeling however I know we are not alone. The arrangements have been made and the plot has been bought all thing I thought I would never do! I am angry and upset however I must move in a positive direction.
There will be a viewing at Sutton funeral home from 5to 7 on tuesday.
The funeral will be at Lee Williams High School on Wednsday at 1:00 and a graveside service to follow and then a big ass party at the Elks which is what my husband wanted. For now Good night it will be busy this next week.
There will be a viewing at Sutton funeral home from 5to 7 on tuesday.
The funeral will be at Lee Williams High School on Wednsday at 1:00 and a graveside service to follow and then a big ass party at the Elks which is what my husband wanted. For now Good night it will be busy this next week.
Friday, March 30, 2012
Wednesday, March 28, 2012
Wednesday
Life is so Delicate. John is resting comfortably and has been surrounded by family and friends. This has been a truly humbling experience to see my children and the love they have for their father and his friends and the outpouring of support. He is resting and peaceful and there doesn't seem to be any pain so for now we comfort. Please take a minute and grab your family and hug them and tell them they are loved. John always did. Family and friends always knew they were loved.
Monday, March 26, 2012
Heavy Heart
I come to you all with a heavy heart. After John doing so well to fight and the zelboraf helping clear the cancer in John's body it seems the brain just had a few to many lesions that have left him not able to care for himself. We have brought him home and placed him in hospice in our home. He seems so much more relaxed. We also had to explain the harsh reality to our children that their father is very ill and will not be here long and hopefully not have to suffer. Sometimes when life seems the bleakest there comes a light. He was able to see one more game, lexi run a race, see all his friends and tell them he loved them, Jenni's baby girl, Josh's first son and Jessica graduate from college and finally cuddle with his wife which might have been for the last time.
This will be a difficult time for all of us.
This will be a difficult time for all of us.
Friday, March 23, 2012
Escape Artist
Just got off the phone with Anne. They tried to do an MRI of his brain today. They sedated him and had him tucked in pretty tight, but some how he managed to get himself out of the tube. The nurses have no idea how he did it. So unfortunately, no tests were successfully performed today. We are hoping they try again tomorrow. They will also do the EEG tomorrow. He is still very disoriented and somewhat combative. He didn't know who Anne or any of us kids were, or that it was the boys birthday today. Please pray that they find out what is going on, because so far, they have no explanation. Please also keep Anne in your prayers. She is doing such an amazing job taking care of our dad, but it is definitely taking its toll. She really is amazing. She has a few of our Aunts up there with her, so tonight, hopefully she will be able to get some rest. Again, I will post as soon as I have updates. Good Night.
Nothing to report
We didn't forget about updating. There is nothing new to report. Waiting on tests to come back. He was sedated most of the day, so that he could rest. Hopefully we will have some news tomorrow. Have a great night and keep him in your prayers.
Update
Just spoke with Anne. The neuro surgeon said, she didn't see any sort of bleed, and even if there was, it was minor and she wouldn't operate, due to his brain just going through radiation. She said the swelling wasn't severe either. They will meet with the neurologist later today to see what she thinks may be altering his state of mind. They are going to do an EEG, to see if he may be having seizures. His cancer doctor(Dr. Samlowski) and his radio oncologist will review the MRI they will be doing today and then come up with a plan of treatment. They are giving him steroids to help the swelling go down in his brain. I am just kind of rambling, trying to remember everything. I hope this makes sense. As soon as I hear more, I will post it on here. If you have any questions, just post in the comments and I will answer them for you. Please just keep praying for him.
Speed Bump
This is John's daughter posting. I told Anne I would do an update for her. My Dad was feeling weird and weak today. In more pain then normal, also. This evening he became more weak and disoriented. They decided to take him to the ER. After some tests, it was revealed that he had some swelling on the brain, so he was air lifted, once again, to Sunrise Hospital in Vegas. Anne and Aunt Fran went down to be with him tonight. As soon as we have more information, we will post it on here. As long as things go as planned, we will still be having the twins birthday party at the bowling alley on Saturday. Please keep our family in your prayers. Will update as soon as we hear something.
Tuesday, March 20, 2012
Tuesday
I know I haven't posted however we haven't had alot of news. It looks like the MRI doesn't show much of a change so we will meet with the radio oncologist on Friday. We'll see We will also meet with Doctor on Friday all of which are on the boys birthday. It looks like the blood work has improved however we will not know everything until Friday. I am back at work hoping that this will bring John even more independence. Please say a prayer for us something has to improve at some point. He is to good for it not. Good night.
Sunday, March 18, 2012
Sunday
Nice weekend was feeling a little under the weather so did not have time to post. John had his MRI yesterday and it went well. He was relaxed so it made it a bit easier then is being a cloudy cool day we stayed in and took naps. All of us Kids included. We will get details when we see the doctor on Friday. He has been feeling well and has his eyes on opening baseball cermonies. The boys turn 11 this week and I am returning to work so it will be a busy week. I believe going back to work will allow John to become even more independent. Here is John wearing his lucky shirt hopefully it did the trick!!!!
Friday, March 16, 2012
Friday
John had a noneventful day! He has his MRI in the morning so please pray that the brain is stable and amh lesions that were there are gone. Not feeling well myself tonight hopfully it is nothing...
Thursday, March 15, 2012
This article brought John to tears. It has been an emotion filled day. He has been sneezing and sneezing. Once again john is overcome by the graciousness of the community. Kingman is such a great community and the spirit with which you have rallied behind our family
is amazing. Thank you Thank you!!!!!!
Golf tourney's success is like
a scene from a movie | |||||
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KINGMAN - Forgive John Bathauer if he feels a bit like George Bailey from the movie, "It's a Wonderful Life." And forgive him if Kingman feels like Bedford Falls to him after the success of the John Bathauer charity golf tournament, put on by the Kingman Firefighters Association Saturday at Cerbat Cliffs Golf Course. With 42 teams and 168 players playing, the firefighters association had hoped to raise $15,000 for the Bathauer family as John is currently battling an aggressive form of melanoma skin cancer. But as the tournament continued and the money was being counted from donations from local businesses, a raffle and the tournament itself, the amount started to climb, reaching $20,000 while the tournament was still being played and peaking at just over $35,000. But what happened after the tournament concluded was a scene straight out of "It's a Wonderful Life." Players donated their prize money back to the Bathauer family, just as the people of Bedford Falls gave what money they had to help Bailey when they found out that George was in trouble. "For me, it did bring those thoughts," said Kingman High Athletic Director Tim Casson, who played in the tournament. "Standing out there when they were doing the prizes and awards, and the tournament winners were saying, 'Here take our tournament winnings and donate that too.' It did bring that to mind." The tournament was just one of many fundraisers that have been put on to help John and his family with the various expenses that have come up since John was first diagnosed back in January and will continue to come up as he moves forward with his treatment. "What happened on Saturday was amazing," John's wife Anne said. "How did this small community raise $35,000 for a family? John says, 'Anyone who bags on Kingman, I-40 is right there and you can get on it.' Because what the community has done this weekend and what they have done is just amazing." The success of the tournament has also sparked conversations about turning the John Bathauer Classic into an annual event to help raise money for a family or families in Kingman battling cancer. And as for John, he has a goal of playing an even bigger part in the tournament next year. "I was told that John's plans are to do this next year and he wants to play in it," said Tom Flanagan of the Kingman Firefighters Association. "If that's his plans then I will put together the best tournament possible." While next year is a long ways away, the focus on Saturday was John and his family as par scores took a back seat to the money being raised. And as Bailey discovered his true worth to Bedford Falls, so has John and Anne to Kingman through their 20 plus years of service with John's dedication to youth sports and Anne's coaching. On Saturday, the community had an opportunity to show how thankful it is. "That's what John said. If you get involved with the community, the community will pay you back," Anne said. "If something happens, the community will pay you back. So get involved with your community." Want to help? The family has set up an account for John Bathauer at National Bank of Arizona, 3825 Stockton Hill Road, 2605 E. Andy Devine Ave., and at 4263 Highway 68, Suite A in Golden Valley. Folks who want to set up a fundraiser can contact the Bathauer family at abathauer1@gmail.com |
Wednesday, March 14, 2012
Went on an adventure today and had a great time. I like going to Laughlin with John now because when I ask him to cash out he listens. Im sure this will not last. I was just excited he wanted to go. He just wanted to get away from the hostpitals and appontments. He was also feeling good. For those of you wondering if he won, yes he did. He is always a winner no matter what the odds:)
Tuesday, March 13, 2012
Tuesday
Boredom sets in. John says, Why am I sitting here day after day I am wasting my time. I have been waiting for this. I think I hit it 3 weeks ago. He had physical therapy and is back to speech so he is already in bed at 8:00. He has really enjoyed all his visits with everyone. Trying very hard to stay focused and positive however doubts creep in. Just want him better now and patience has never been my strong point. We have spoken about either heasing to laughlin tomorrow or playing dice and cards hopefully he has a good night. He has been sleeping well. Good night...
Monday, March 12, 2012
Monday
Down to 1 mg steroid so he has a low grade temp. He had a great day with lots of visits. Seeing him happy helps me to focus on the positves. Anyone who wants a shirt from this weekend have should get ahold of Fran or facebook me and let me know. John will have his MRI on Saturday may the luck of the Irish be with him and may the lesions be gone after whole brain radiation. Please keep praying.
Sunday, March 11, 2012
Amazing
Thank you, I would have posted something yesterday however I was emotionally spent. To see my husband surrounded by his friends and family and for our family to be lifted up like it was, Was in one word Amazing. I m not sure all of you know this however 7 weeks ago my husband could not have stood let alone laugh and smile for more than a half of an hour and yesterday made him more happy than I can remember. He was very tired when we arrived home, and his legs were tired from standing however late last night he said, " I had a dream my friends put on the best golf tourney ever and next year I will golf in it" What a fantastic day! People coming together for a family and putting eveything aside and just having fun. Our family is so blessed because we have all of you in it. I thank everyone and Like Tom Flannigan said it would be difficult to name everyone as I would miss someone. All I can say is thank you for surrounding us with love. My Family is so thankful and the community and their father has taught them a valuable lesson, "You get out of a community what you put in." Kingman is a place one should be proud to live and 20 years ago when I made my choice to live here I made the right decision and to my husband he has always loved this community and understood the worth of a place is in its people and through the relationships on creates.
I will stop blathering now thank you for teaching my children a lesson about community support and for lifting us up.
I will stop blathering now thank you for teaching my children a lesson about community support and for lifting us up.
Friday, March 9, 2012
Friday
GOOD MORNING!!! We are heading to Las Vegas today and who knows what the doctor will say. Clinically John is so much better however his blood work still needs work . We are working on protein intake and electrolyte intake by drinking pedialite(Thanks kasie and Joe juelfs) and high protein shakes and vitamans and he has only been on Chemo for 2 weeks. We have to focus on the positives amd move forward.
this weekend will be a big one the gold tourney and family and friends coming together. John will be on hole 14 at curtis Cutshaw's house. John has been pretty emotional and so thankful for the great people in his life.
We also want to remind anyone about the baby in our community that has been diagnosed with cancer. We do not know all details however we want to support her as well. People can make donations to Wells Fargo for Morgan. I'm not sure of the details I just wanted to think of others who are struggeling with this Monster.
Finally to all those friends that come and hold my husbands hand while he goes through this I appreciate it. He is a different man when you come and visit. Thank you!!!!!! Thank you!!!!
this weekend will be a big one the gold tourney and family and friends coming together. John will be on hole 14 at curtis Cutshaw's house. John has been pretty emotional and so thankful for the great people in his life.
We also want to remind anyone about the baby in our community that has been diagnosed with cancer. We do not know all details however we want to support her as well. People can make donations to Wells Fargo for Morgan. I'm not sure of the details I just wanted to think of others who are struggeling with this Monster.
Finally to all those friends that come and hold my husbands hand while he goes through this I appreciate it. He is a different man when you come and visit. Thank you!!!!!! Thank you!!!!
Wednesday, March 7, 2012
Wedneday!
SWASS. The word of the day! John has developed sweating in the rear area he says it doesn't bother him until he gets up. He has been pretty tired today and he wants to be progressing faster than he is. I am trying to get him to eat more and putting more proteins into his body. I also have him drinking high protein shakes. We are going to kick this thing. Everything has been getting better however he wants it faster. He just wants to to feel better everyday and gets angry when he doesn't feel he has made progress. We have big weekend coming up and continue to be amazed by this community and are only hoping to get better one day at a time. It seems like it has been forever and it has been two months today. It takes time to get better and hopefully we are getting there. BETTER EVERYDAY!!!!
Monday, March 5, 2012
Monday down day
John had a sleepless night which is understandable as we have a big week with the Doctor Appointment and golf tourney this weekend. He was emotional which has not yet happened until today. He just said,"its been such a long time and I am so tired. He is feeling good but wants to be further along than he is. His stats on EKG looked good and his lungs sound good he is just tired. He has been on an upswing and wants to stay on this path. Once he gets some sleep he will be ok. Me too! Hats off for Cancer at KHS tomorrow. What a great community!
Sunday, March 4, 2012
Sunday
Today was a great day! Slept in an and had a pain free productive day. John played poker for about 2 hours and workied his brain. He also went out for a walk as it was such a beautiful day. the Kingman Daily Miner did a great article on his fight however forgot to mention his other 3 very important children Jenni, Josh, and Jessica. No one could ever forget you.
Finally it will be a very busy week we have an EKG and blood work tomorrow hoping that the blood is better and a doctors appointment on Friday in Vegas and finally the golf tourney this weekend that he is hoping to be able to attend or at least sit at Curtis's house to say hey to the golfers.
Once again we can not say thank you to the community enough. Praying for an even better week ONE DAY AT A TIME!
Finally it will be a very busy week we have an EKG and blood work tomorrow hoping that the blood is better and a doctors appointment on Friday in Vegas and finally the golf tourney this weekend that he is hoping to be able to attend or at least sit at Curtis's house to say hey to the golfers.
Once again we can not say thank you to the community enough. Praying for an even better week ONE DAY AT A TIME!
Saturday, March 3, 2012
Saturday
Friday, March 2, 2012
Friday
It has been a week since John began his chemo treatments and his changes are remarkable. He has set a goal to beat this this disease and get to No evidence of disease. Yesterday he set goals for himself to get stronger and work his PT even more. We are so thankful to the Kingman Community and the outpouring of support we get daily. We could not ask to be part of a better community. Thank you for your continued prayers and support and I will continue to update his progress which today is great!!! We will get blood work done this next week and meet with The oncolgist on Friday the 9th. Once again Thank you!!!
Tuesday, February 28, 2012
Monday2/28/12
Another very good day. It seems we are always waiting for the something else to go wrong so we get suspicious when everything is progressing right along. Thanks to all of you who have kept us in your thoughts and prayers it really means so much and I will be thanking you all for graciousness for as long as I live. More hope Every day!
Another very good day. It seems we are always waiting for the something else to go wrong so we get suspicious when everything is progressing right along. Thanks to all of you who have kept us in your thoughts and prayers it really means so much and I will be thanking you all for graciousness for as long as I live. More hope Every day!
Monday, February 27, 2012
Monday
Everyday is better than the next. No night sweats last night and only 3 total pain meds today. We even got a game of pitch in which I won. He is walking and joking more without pain. I think we are all in shock a bit and disbelief as it has been a rough month and a half. He deserves to have some good days. Through the power of prayer and the support of all of you we are going to kick the heck out of this disease. I would like you all to continue to pray for John however don't let us forget all of the others struggling with this monster. Fight like hell!!!!
Sunday, February 26, 2012
Saturday, February 25, 2012
Saturday
John is currently playing video poker. This is day 2 on the meds and many aches and pains are gone and he has been resting the one major side effect has been dry mouth from the radiation. Once again we have been overwhelmed by the communty as they held a fundraiser today and our family members said it was amazing. will post pictures on the blog and soon as someone gets me some. I have been reading up of course on how quickly we might see results from the zelboraf drug and most say about two days. He is up went outside and hopefully will make it to the boys game for awhile tomorrow. I am going to try and organize a race at some point called outrun the sun so will be looking for volunteers. We as a family have a new cause and will commit to it 100% until they find a cure!!!!!
Friday, February 24, 2012
TGIF
Today we received the Zelboraf and john took his first dose. We are excited to see if he begins to feel better quickley. Thank you for all your blessings things are moving now and hopefully we are on the healing path. John has been lighter hearted and joking more. I don't want him to be afraid anymore and I want him to feel good again.
Thursday, February 23, 2012
Thursday 2/23/12
Yeah!!!!John slept all night and is still sleeping today. I think the steroids being reduced have made a difference. I spoke with the Medical company this morning we will have the Drug in our hands tomorrow morning before 10:00 am. Thank God! I am hoping this will bring John some long awaited comfort. I am going to try and get back to work in the next two weeks as I do not want to lose all of my days in case something else comes up. This is a great day so far!
Tuesday, February 21, 2012
Tuesday
Tough Day...Ready to get the chemo Drug. Thank you Cheryl for everything including my sanity.
Monday, February 20, 2012
Monday 2/20/12
Today was a good day... The drug company called and told us our copay for now will be 20 a month. thank Goodness. I just hope this doesn't change. I am hoping that it comes sooner than Friday as the company said it should We just want it now. As a parent you never know what your children are thinking until they actually say it Mike says," Mom you never take care anything, Matt replies yelling, are you kidding she is taking care of dad and she can't even go to work, so she takes care... It makes me tear up abit as I write this. I worry about our kids... John has therapy tomorrow so He should be pretty tired also since his steroids have been cut in half we are hoping he begins to sleep for longer periods of time.
So for the time being it is the waiting game... Thank you for all your support.
So for the time being it is the waiting game... Thank you for all your support.
Sunday, February 19, 2012
Sunday
Today was a good day however John's hips are still really hurting. He is putting up with the pain like a champ and taking as many baths as possible as this gives him comfort. We are going to try and get him up more often this week even if he balks at it. We are also hopeful that we will receive the chemo meds before the end of next week as we are all anxious. He has been taking visitors in the afternoon as we are trying to get him to stay up during the day and not all night. Once again thanks for all your support Kingman is an outstanding community.
Oh and of course Lexi being the jokester got her dad some hair. What a good daughter as are all his wonderful children.
Oh and of course Lexi being the jokester got her dad some hair. What a good daughter as are all his wonderful children.
Saturday, February 18, 2012
SAturday
2/18/12
John had a morning and afternoon. He stayed ued if he begins up all afternoon so I am hoping that he is able to sleep tonight. He still is having the night sweats so it is a bit irritating to him. The one noticable differnce are his spirits. He seems much happier and motivated to get moving. I thisn he will be even be more excited once he begins the tratment.
For now we pray for no pain and sleep. We are hoping he feels good enough for visitors on Sunday!
Good night
John had a morning and afternoon. He stayed ued if he begins up all afternoon so I am hoping that he is able to sleep tonight. He still is having the night sweats so it is a bit irritating to him. The one noticable differnce are his spirits. He seems much happier and motivated to get moving. I thisn he will be even be more excited once he begins the tratment.
For now we pray for no pain and sleep. We are hoping he feels good enough for visitors on Sunday!
Good night
Friday, February 17, 2012
Las Vegas
2/17/12
We were all a bit aprehensive on the ride to Vegas praying that he would have a certain genetic Mutatation that has been most successful in fighting melanoma. Yeah our prayer answered The Doctor said John should have have immediate results that could hold off the cancer for several months and he should begin to feel better. While this is no cure we are cautiously optomistic. The Doctor and nurses at this facility are so caring I just really am impressed by the compassion . So we await the day the chemo drug will arrive which is called vemurafenib a realitively new drug. The nurse said if this were a diagnosis 3 years ago we would not have these chemo drugs. The good news are the side effects are minimal. This will be a long journey however I just can not thank Kelly Shuffler and Becky collins enough for leading us to this Doctor. Hope Springs Eternal. Today good news. John is very tired today after the trip, however I look forward to the days when he is laughing and on the baseball diamond coaching the youth of Kingman and our boys and wanting to go to laughlin to play.
We were all a bit aprehensive on the ride to Vegas praying that he would have a certain genetic Mutatation that has been most successful in fighting melanoma. Yeah our prayer answered The Doctor said John should have have immediate results that could hold off the cancer for several months and he should begin to feel better. While this is no cure we are cautiously optomistic. The Doctor and nurses at this facility are so caring I just really am impressed by the compassion . So we await the day the chemo drug will arrive which is called vemurafenib a realitively new drug. The nurse said if this were a diagnosis 3 years ago we would not have these chemo drugs. The good news are the side effects are minimal. This will be a long journey however I just can not thank Kelly Shuffler and Becky collins enough for leading us to this Doctor. Hope Springs Eternal. Today good news. John is very tired today after the trip, however I look forward to the days when he is laughing and on the baseball diamond coaching the youth of Kingman and our boys and wanting to go to laughlin to play.
Thursday, February 16, 2012
Thank you!
Just want to thank KAOL Faculty, Staff, and Kids, Your gratitude is greatly appreciated and we as a family are overwhelmed with the kindness of Kingman Comminity. As John said today," This is why I defend this town and choose to make my home here." The families support one another. Once again Thank you.
We will update you upon our return from Vegas. Pray for us please. Thank you.
We will update you upon our return from Vegas. Pray for us please. Thank you.
2/16/12
John finished his last radiation treatment treatment today and is tired. We will meet with oncologist on Friday to see what the plans are. We are trying to keep John eating which has never been a problem until now. He will eat cookies and mac and cheese just trying anything. We are trying to keep spirits high however the unknown is a difficult thing.
John finished his last radiation treatment treatment today and is tired. We will meet with oncologist on Friday to see what the plans are. We are trying to keep John eating which has never been a problem until now. He will eat cookies and mac and cheese just trying anything. We are trying to keep spirits high however the unknown is a difficult thing.
Wednesday, February 15, 2012
Diagnosis
I also wanted to post the medical diagnosis. John had a stroke which led to the diagnosis of Metastatic Melanoma that is widespread. Two years ago John had a stage 2 melanoma removed from his back. The Mayo Clinic removed it did a sentinal node test and said everything was clear. He didn't have any scans follow up was to check yearly with dermatologist which is what he did. Do not take this disease lightly as there is no cure. If we could change anyhting we would have demanded a scan. Please wear sunscreen and get any moles checked that you are worried about. We hear so much about prostate cancer and breast cancer I wish there was as much literature about melanoma out there however you can be sure our new cause will be get more information out about this deadly disease.
Wednesday 2/15/12
2/15/12
Today is the first day of this blog. This is just to keep everyone up to date on John's progress so that I don't have to repeat it as it is very difficult for me. First I need to sincerely thank all the Staff at KHS for the wonderful gifts and dinners your thoughtfulness has been overwhelming. To the staff at Manzanita we feel the same thank you for supporting the boys and our family with the wonderful dinners. To the Students and staff at KAOL Middle School we appreciate putting on a fundraiser likewise to all others doing fundraisers for our family. Words can not express my feelings towards this community and its giving nature.
I will use this to document how John is feeling and what we are doing medically as we are about to embark on a difficult journey and our family will need your prayers and suppport. Which you have already given so freely.
Tomorrow is John's last radiation treatment and on Friday we will be meeting with his oncologist in Las Vegas to determine a plan of action. He has been exhausted as the radiation techs told he would be. By the way the Kingman Cancer Center is fantastic. The staff has made this scary nightmare a bit more bearable with their kind hearts. As for physical and speech therapy that is going well as many of you know when John had his stroke he lost some of his left vision. It is coming back slowly and we have taken to video poker on my sisters IPAD to make him look to his left. I am trying to make him eat however his appetite is not very strong. John still has his great sense of humor and is staying as positive as can be expected. For all of you baseball parents your children have been a huge motovational push for him as he had very high expectations for this year. As for his friends and workmates please continue calling and visiting as you are keeping him going.
I will try as much to update as possible as I do stay pretty busy with my patient. I am thankful that I work for a district that allows employees to have sick days roll over as no one is ever ready for something like this. The same goes for John's employer, Cascades Tissue has been truly amazing.
That is it for now. Thank you again and good night.
Today is the first day of this blog. This is just to keep everyone up to date on John's progress so that I don't have to repeat it as it is very difficult for me. First I need to sincerely thank all the Staff at KHS for the wonderful gifts and dinners your thoughtfulness has been overwhelming. To the staff at Manzanita we feel the same thank you for supporting the boys and our family with the wonderful dinners. To the Students and staff at KAOL Middle School we appreciate putting on a fundraiser likewise to all others doing fundraisers for our family. Words can not express my feelings towards this community and its giving nature.
I will use this to document how John is feeling and what we are doing medically as we are about to embark on a difficult journey and our family will need your prayers and suppport. Which you have already given so freely.
Tomorrow is John's last radiation treatment and on Friday we will be meeting with his oncologist in Las Vegas to determine a plan of action. He has been exhausted as the radiation techs told he would be. By the way the Kingman Cancer Center is fantastic. The staff has made this scary nightmare a bit more bearable with their kind hearts. As for physical and speech therapy that is going well as many of you know when John had his stroke he lost some of his left vision. It is coming back slowly and we have taken to video poker on my sisters IPAD to make him look to his left. I am trying to make him eat however his appetite is not very strong. John still has his great sense of humor and is staying as positive as can be expected. For all of you baseball parents your children have been a huge motovational push for him as he had very high expectations for this year. As for his friends and workmates please continue calling and visiting as you are keeping him going.
I will try as much to update as possible as I do stay pretty busy with my patient. I am thankful that I work for a district that allows employees to have sick days roll over as no one is ever ready for something like this. The same goes for John's employer, Cascades Tissue has been truly amazing.
That is it for now. Thank you again and good night.
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